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[2][3] She died from a blood clot one week after receiving a double lung transplant at the age of 21. Really. She has a younger sister, Elanore Nordquist. Did you encounter any technical issues? Read full obituary. Im grateful for my own head and for all the weird things in it. "[12] She died on September 2, 2018, at UC San Diego Thornton Pavilion. Due to no formal contracts over ownership of the project being in place, the company continued to profit from the project. "I didn't realize how much I didn't expect to live this long. YouTube Originals released "Claire," a documentary about Wineland, which was directed and produced by Academy Award winner Nicholas Reed (The Lady in Number 6) and Ryan Azevedo ("Unpinned") and produced by Paul Foley (Unpinned). She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.". [12][1][13], In 2016, Wineland was listed as one of Seventeen magazine's 17 Power Teens. Swami Vivekananda Cause of Death, Age of Death, and Other Facts! This time, she was raw and allowed herself to cry. The genetic and progressive disease creates an overabundance of mucus, which traps infections and blocks airways in the lungs. The family received immense support from friends, and community. The Extended Hospital Stay Grant program provides financial assistance to families with children experiencing a hospital stay of at least 14 consecutive days due to cystic fibrosis. But then, a mix of health and life complications took a toll and knocked her off the list, temporarily. 2.61M subscribers Claire Wineland Dies at 21 and Leaves Beautiful Message Cystic fibrosis activist reveals the most important lesson she learned while living her life in a hospital room. A post shared by Claire Wineland (@claire.wineland) on Mar 19, 2018 at 11:32am PDT, Life-changing drug cost 'should be lowered', Ukrainian ministers killed in helicopter crash, We need to end this war, says Zelensky, after fatal helicopter crash, Iran man who beheaded wife jailed for eight years. A double-lung transplant, when successful, can add years to a patient's life.Claire's parents learned to trust their independent and strong-willed daughter. Claire Wineland, who inspired millions on YouTube chronicling her cystic fibrosis battle, has died after a lung transplant By Kyle Swenson September 4, 2018 at 3:58 a.m. EDT YouTube star. She was an avid dog lover and had a dog named- Daisy.. She listened to the risks and the long list of side effects and emerged unfazed. She laughed at the absurdities that often swirled around her, including those moments in the produce aisle at Whole Foods when shoppers would prescribe her unsolicited cures, telling her to eat more pineapple or that a mushroom cleanse would take care of everything. You are an inspiration and brought joy to many. "I'm grateful for the doctors that'll be scooping out these lungs and giving me some more life to work with. Despite this, she maintained a large following on Twitter and Instagram, speaking frankly about her life and sharing personal moments. Search by Name. Ms Wineland was a supporter of ex-presidential candidate Bernie Sanders, and she once fled hospital to attend one of the Vermont senator's rallies. Extended Hospital Stay Grants provide financial assistance to families who find it difficult to arrange funds for an extended hospital stay. Sympathy . She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. The cause of death was a massive. It also complicates digestion, affects the pancreas and other organs and, eventually, leads to respiratory failure. Yeager posted a video of herself doing a happy dance with friends in the waiting room. Founded a charity to help others suffering from the disease. The Plain Dealer Homepage. Cystic fibrosis is a genetic condition with no known cure. They remained close friends, and shared the responsibilities of taking care of their daughter. . "I've struggled more with guys, depression drugs, family and career than I ever have with my illness. pic.twitter.com/BsTEFmquR7. It was a welcome, albeit terrifying, development for those who loved her.To get on the list for new lungs, she had to be sick enough to need them, yet strong enough to withstand the surgery and recovery. Louis Zamperini Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! "Claire was able to save the life of two people, her right kidney was transplanted to a 44 year old woman in San Diego, and her left kidney was transplanted to a 55 year old male in Northern California. 2023 BBC. The BBC is not responsible for the content of external sites. She has a younger sister named Ellie Wineland. Seeing people who are sick as anything more complex and intelligent than that would mean we couldnt use them as these false beacons of hope. [2] Inspired by the community's support while she was in a coma, she launched the 501(c)(3) non-profit to provide support to children with cystic fibrosis and their affected families. Sign up here to get The Results Are In with Dr. Sanjay Gupta every Tuesday from the CNN Health team. "Claire had a change of heart about transplant earlier this year, prompted by a steep decline in her health that robbed her of the energy and ability to do what gave her joy and purpose. The Foundation has funded more than 26 families till now. 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Claire Wineland, social media personality who spoke about living with cystic fibrosis, died Sunday, Sept. 2, 2018, of complications after suffering a stroke following a double-lung transplant,. real family is great. My parents are divorced. Snap Greene is the alter-ego of 13 year old Claire Wineland. She'd also get a butt.She knew that the call could come at any minute, and on August 26, it did. "Her right kidney was transplanted to a 44-year-old woman in San Diego, and her left kidney was transplanted to a 55-year-old male in northern California," her mother Melissa Yeager told CNN. I had to be honest, she once explained. Before signing off, Claire implored viewers to do one thing. Shed work on a book promising it wouldnt be another happy sick person book and appreciate the small things like swims in the ocean for as long as she was able. By asking for it, she said, she could relax and get in the headspace for whatever would come next.Before signing off, Claire implored viewers to do one thing. Who was Ukrainian minister Denys Monastyrsky? Growing up, I didnt have any role models that were sick that were doing anything with their life, ever. I dont want to actually die. At the time of birth, she had the life expectancy of only 5 years old. She has also authored the book, Every Breath I Take, Surviving and Thriving with Cystic Fibrosis.. Menu. Im grateful for all the people who donated to help me get through transplant. Read about our approach to external linking. There is no passionate rant to be had here I am just happy and thought I would let you all know. Claire Wineland's greatest wish, her mother said, was that "her foundation will live on, even in her absence.". Im grateful for the chance to keep being a person. Claires foundation was a way for her to assure that others living with CF enjoyed the same hope, strength and joy that she enjoyed. She had a popular YouTube channel, gave public speeches, and made appearances on CNN and The Dr. Oz Show. She founded the non-profit Claires Place Foundation to provide emotional and financial support to families living with cystic fibrosis. Find an Obituary . The 2016 Democratic presidential candidate paid tribute to her in a post on Twitter. Claire | The Documentary 4,508,139 views 3 years ago Directed by Oscar-winning filmmaker Nick Reed & Ryan Azevedo, the film tells the story of activist and Claire's Place Foundation Founder. Claire Wineland became renowned for her posts about illness and mortality on social media A young US woman with cystic fibrosis who made a name for herself through writing, speaking and social. Claire had a change of heart about transplant earlier this year, prompted by a steep decline in her health that robbed her of the energy and ability to do what gave her joy and purpose. Also, Claires corneas and tissue was recovered and she will be able to enhance the life of up to 50 people, a family services specialist wrote to Yeager in an email message. Its so much easier to believe that sick people are cherubs- held in perpetual youth and innocence- who simply dont understand the truth of their condition because they are living up in the clouds. UC San Diego Health, San Diego, California, United States. When it came to her care, she knew her body best what worked for her, what didnt and how far she was willing to go. ", Claire took the gift of life and her health seriously, but she didn't take herself too seriously. [10], Wineland continued to operate her YouTube channel and uploaded nine videos prior to her death. I want to see where it goes. The 21-year-old was diagnosed with cystic fibrosis at birth, and was taken off life support on Monday after. A Warner Bros. I have found a new hero, her name is Claire, I am a US Marine and a Retired Police Officer, and just recently viewed on of Claires Videos on U-Tube, I became instantly in love with her, as Im sure many have. Biography - A Short Wiki Entrepreneur and founder of the award-winning non-profit organization Claire's Place Foundation, which provides support to families living with Cystic Fibrosis. The 'My Last Days' Subject Is Helping Others Live Their Best Lives", "A lung transplant gave her hope for a longer life; now her family prays for 'another miracle', "What I - and the World - Learned from Claire Winland's Passing", "AARC Congress Announces Claire Wineland As Keynote Speaker", "breathless choir Claire's Place Foundation", "I stopped doing the Clairity Project because I got screwed over", "Claire Wineland, inspirational speaker and social media star, dies one week after lung transplant", "Meet the 2015 Teen Choice Pro-Social Honorees", "Nonprofit & Corporate Citizenship Awards 2014", Claire's Place Foundation: Official Website, https://en.wikipedia.org/w/index.php?title=Claire_Wineland&oldid=1133052069, 21st-century American non-fiction writers, Short description is different from Wikidata, Creative Commons Attribution-ShareAlike License 3.0, This page was last edited on 12 January 2023, at 02:13. Roy E Disney Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Her parents, Melissa Nordquist Yeager and John Wineland, split up when Claire was 3, but they remained friends and partners in her care. I was convinced I looked like an ugly sickly five year old for the first two years of high school and that that was why guys never seemed to be interested in me in that way. She has a younger sister namedEllie Wineland. The grants have enabled families to pay their mortgage, rent, medical bills and other essential living expenses. Is there someone you miss whose memory should be honored? She attended the Santa Monica College, in California, but had to drop out of college, due to her illness. A supportive space for people & families affected by Cystic Fibrosis. No matter the obstacles placed in front of her, of which there were many, she refused to be pitied and was determined to live a life that mattered. She sat in an educational meeting at UC San Diego Health's transplant center and diligently took notes.Revealed on her left ankle was a tattoo: the thumbs-up "Don't Panic" logo from "The Hitchhiker's Guide to the Galaxy. Cystic fibrosis did not define Claire Wineland. She decorated her hospital room, and posted inspirational messages on its walls. Youll be missed deeply. Claire was an activist, author, TEDx Speaker, social media. To get on the list for new lungs, she had to be sick enough to need them, yet strong enough to withstand the surgery and recovery. According to her, pitying ill people was disempowering them. Jace Prescott died at age 31, too young. Claires parents learned to trust their independent and strong-willed daughter. Ive struggled more with guys, depression drugs, family and career than I ever have with my illness. appreciated. Sense of injustice lingers after Seoul Halloween crush, Chess gets a risqu makeover. I didnt expect to have a chance. More than 30,000 people in the United States, more than 70,000 worldwide, have cystic fibrosis, according to theCystic Fibrosis Foundation. Despite emergency surgeries, and what her mother described as "Herculean efforts" to try to save her, the daughter she knew was gone. She watched one of her doctors squirm as he gave her the safe-sex talk. Claires Place Foundation offers two kinds of support. When it came to her care, she knew her body best -- what worked for her, what didn't and how far she was willing to go.So when she became a legal adult and told them she had no intention of getting a double-lung transplant, they had to accept her decision, even if it pained them. The chance to keep being a person transplant surgeries CNN and the Dr. Show. She attended the Santa Monica College, due to no formal contracts over ownership of the project 2016 Democratic candidate. In a post on Twitter and Instagram, speaking frankly about her and... 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